This week was not a good week.
So far we have managed, between my two children, to tick the boxes on a fair swathe of far too many major chronic diseases. It’s like we’re holding a bingo contest in a doctor’s surgery as they cry out various diagnoses terms, and I’m sitting there with a blank look and a pencil marking them off against some sort of ineffable list. I call it playing label bingo.
Continue reading “Playing Label Bingo”
Sometimes life catches up with us in weird ways. We’ve been having a very busy November at the moment, and trying to make sure ‘everything’ happens when it needs to happen has been hard. And I’m not talking about fripperies, I’m talking about having enough time to do basic stuff like washing clothes and dishes. The stacks in our bathroom and kitchen are getting very high indeed at the moment.
Continue reading “Crazy-vember”
It’s been an interesting few weeks. We finally got a diagnosis for C, only to discover that the diagnosis had been sitting in the ‘books’ for at least one year. A monumental stuff-up with the hospital administration meant all correspondence was going to the wrong doctor…
…but it’s OK now. I’m OK with that, I think. The diagnosis was not unexpected either – Cerebral Palsy. After all, the specialist who’s been treating him is a world-class medical researcher into CP. But still, it is … interesting.
We now have another set of letters to add to the list of medical conditions C has been accumulating.
And yet, and yet. My heart still wants to say, ‘We’re not that far from normal, are we?’
Continue reading “Are we really that far from ‘normal’?”
My son C loves the macabre. He’s a sensitive boy; he can’t watch Finding Nemo, but strangely can watch Iron Man. And he’s not too fond of history when it doesn’t involve trains.
But even still, we have managed to find resources to get him engaged and interested in history – through the macabre. Continue reading “Macabre History”