Playing Label Bingo

This week was not a good week.

So far we have managed, between my two children, to tick the boxes on a fair swathe of far too many major chronic diseases. It’s like we’re holding a bingo contest in a doctor’s surgery as they cry out various diagnoses terms, and I’m sitting there with a ┬áblank look and a pencil marking them off against some sort of ineffable list. I call it playing label bingo.
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Crazy-vember

Sometimes life catches up with us in weird ways. We’ve been having a very busy November at the moment, and trying to make sure ‘everything’ happens when it needs to happen has been hard. And I’m not talking about fripperies, I’m talking about having enough time to do basic stuff like washing clothes and dishes. The stacks in our bathroom and kitchen are getting very high indeed at the moment.
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Are we really that far from ‘normal’?

It’s been an interesting few weeks. We finally got a diagnosis for C, only to discover that the diagnosis had been sitting in the ‘books’ for at least one year. A monumental stuff-up with the hospital administration meant all correspondence was going to the wrong doctor…

…but it’s OK now. I’m OK with that, I think. The diagnosis was not unexpected either – Cerebral Palsy. After all, the specialist who’s been treating him is a world-class medical researcher into CP. But still, it is … interesting.

We now have another set of letters to add to the list of medical conditions C has been accumulating.

And yet, and yet. My heart still wants to say, ‘We’re not that far from normal, are we?’
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My Kid is NOT Average, and Pride Has Nothing to Do With It.

My Kid is Not Average, and Pride Has Nothing to do with it, yellowreadis.com, Image: Purple flowers in grass

What can I say about the post, ‘My kid is average and I am oh so proud‘ ?

I can say that it makes me feel deeply uncomfortable. Maybe it’s the passive aggressive tone, maybe it’s the conflation of their child’s achievements and their own ego. I’m not sure.

What I think is damaging and breath-takingly dangerous about this post, is that it reinforces stereotypes that encourage discrimination and prejudice. Even if the opposite was the author’s intent. Which I’m not sure is the case.

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