This week was not a good week.
So far we have managed, between my two children, to tick the boxes on a fair swathe of far too many major chronic diseases. It’s like we’re holding a bingo contest in a doctor’s surgery as they cry out various diagnoses terms, and I’m sitting there with a blank look and a pencil marking them off against some sort of ineffable list. I call it playing label bingo.
Continue reading “Playing Label Bingo”
When you’re staring at the far side of the bell curve of statistical probability, ‘normal’ in many ways ceases to have much meaning.
Let me run through a few basic numbers with you and I’ll explain how improbable our life is, from a statistical perspective.
Continue reading “Community”
Sometimes life catches up with us in weird ways. We’ve been having a very busy November at the moment, and trying to make sure ‘everything’ happens when it needs to happen has been hard. And I’m not talking about fripperies, I’m talking about having enough time to do basic stuff like washing clothes and dishes. The stacks in our bathroom and kitchen are getting very high indeed at the moment.
Continue reading “Crazy-vember”
There is a wonderful, probably reasonably obscure book by Rafael Sabatini called “Bellarion the Fortunate” where the intellectually gifted Bellarion is sent out into the world by his abbot because his reading and reason have lead him to believe – with the certainty of an intellectual who has read all the literature and thought hard about it in his convent – that evil and sin are a construct and do not exist.
“But to all the weapons of his saintly rhetoric Bellarion continued to oppose the impenetrable shield of that syllogism of his which the abbot knew at heart to be fallacious, yet whose fallacy he laboured in vain to expose. ” 
The book is not a treatise on the reality of good or evil, but an adventure book which ends with a very worldly Bellarion who is very much more aware of his fellow humans after leaving his ivory tower of thought.
But I am not writing today to talk about Bellarion and the nature of his discussions on good and evil. I am instead going to write about the work, so far, of Dr Clementine Beauvais, and her blog entries on ‘The Giftedness Project’ .
Much like Bellarion’s abbot, I do not expect to be able to make much of an impression on Dr Beauvais as she has her armour of academic credentials, and the raft of knowledge collected from many thousands of academics discussing ideas among themselves with little reference to the outside world, and that armour is very strong. She has also made clear that she is not interested in the reality of giftedness, which she believes to be largely a construct of society.
Continue reading “Darn Those Mythological Gifted Kids Who Are a Construct of Our Social Norms”
Last weekend, we paused briefly in our home renovating/DIY journey and watched the movie ‘Temple Grandin‘. It is a wonderful film, but that wasn’t the most interesting part of the experience. That is reserved for learning about the different ways people think and process information. Particularly sensory information.
Continue reading “Day to Day Sensory ‘Fun’”
Parenting Gifted and 2e kids, much like parenting in general, but only more-so, for me has been a journey into the unknown.
When C was a baby, I bought all the parenting books, and listened to the advice of the maternal and child health nurses. I spent hours trying to get him to nap during the day – as was developmentally appropriate. The advice just didn’t work, so I eventually muddled through, and it was only later that I discovered that gifted kids are wired differently, and have different developmental milestones.
Continue reading “Gifted and 2E Parenting”
It’s been an interesting few weeks. We finally got a diagnosis for C, only to discover that the diagnosis had been sitting in the ‘books’ for at least one year. A monumental stuff-up with the hospital administration meant all correspondence was going to the wrong doctor…
…but it’s OK now. I’m OK with that, I think. The diagnosis was not unexpected either – Cerebral Palsy. After all, the specialist who’s been treating him is a world-class medical researcher into CP. But still, it is … interesting.
We now have another set of letters to add to the list of medical conditions C has been accumulating.
And yet, and yet. My heart still wants to say, ‘We’re not that far from normal, are we?’
Continue reading “Are we really that far from ‘normal’?”
This topic is close to my heart, because it is something we deal with in this house everyday. As I have talked about before, both my kids have LDs. My son has SPD and ideopathic toe walking (plus another unknown disability we’re going through the wringer to get diagnosed). My daughter has anxiety disorder – she gets stressed and then is unable to feel pain – which causes her to be a sensory seeker – she likes throwing herself onto the floor for the bump. I cried the first time she complained about a minor injury. Because it was a big deal – it meant that she was able to feel it, and therapy was working.
So today I’m going to talk about how we incorporate strategies into our day to keep everyone on an even keel. Some of these are for the disabilities, some for the OEs. They all help.
Continue reading “Keeping Balanced: Promoting Health and Wellness in the Gifted/2E Child”
My little girl, J is a funny girl sometimes. Recently, when we took C to his physio session at the hospital, we had to share the room with another therapist and patient. J loves these ‘go Doctor’ sessions, as she calls them – there’s lots of cool toys, and she usually has Mummy running around after her while C ‘plays’ with the therapist. This time, she spent her time watching the other patient – a teenage girl with motor problems – grab toys from one location and crawl to another to put it in a circle. Suddenly J wasn’t next to me, but had raced forward to join the other girl – grabbing toys and putting them in the circle. I quickly sped forward and scooped her up, exclaiming,
‘I know it looks like a lot of fun, but it’s the big girl’s turn now.’
The other girl and therapist laughed and J went back to playing with her toys and copying and bugging her brother.
It was only after the session that it hit me. This is J’s normal. She has spent her life going in and out of doctors’, therapists’, and specialists’ waiting rooms. It’s been like that from the very beginning, even in the womb.
Continue reading “Normalising Disability”