I still remember the moment I realised my son was Autistic. We were walking down a leafy, tree-lined street and my son asked me,
“Mummy, how can you tell what people are feeling?”
As I explained how I knew based on how people’s faces and bodies moved, I watched my son’s expression – it was shocked surprise. The idea that most people could just tell by looking at each other came as utterly mind-bending. It was like Valentine Michael Smith from ‘Stranger in a Strange Land‘ learning about the alien customs of Earthlings that he resembled, but did not grok.
That conversation changed everything.
Continue reading “A Matter of Perspective”
There’s a funny thing that happens with medical practitioners when labels change. A thing that took me by surprise, and not in a good way.
You see, in the last few weeks, I have had the very strange experience of being subjected to what I will call ‘shallow caring’. This is a strange phenomena where medical people metaphorically put their hand on my shoulder and imply that I am living a life that must be difficult, impossible and life destroying. It’s a strange and slightly humorous situation that always seems to end with the suggestion that my children would be far better off with professionals (read teachers) taking some of the ‘burden’ of raising my children.
But I think the part of this that I find most amusingly irritating, is that some of these are the same professionals with whom I have had to previously work hard at convincing that my children actually needed help. The difference? Labels, not behaviours. Continue reading “Life Changing … Not Life Destroying”