Normalising Disability

My little girl, J is a funny girl sometimes. Recently, when we took C to his physio session at the hospital, we had to share the room with another therapist and patient. J loves these ‘go Doctor’ sessions, as she calls them – there’s lots of cool toys, and she usually has Mummy running around after her while C ‘plays’ with the therapist. This time, she spent her time watching the other patient – a teenage girl with motor problems – grab toys from one location and crawl to another to put it in a circle. Suddenly J wasn’t next to me, but had raced forward to join the other girl – grabbing toys and putting them in the circle. I quickly sped forward and scooped her up, exclaiming,
‘I know it looks like a lot of fun, but it’s the big girl’s turn now.’

The other girl and therapist laughed and J went back to playing with her toys and copying and bugging her brother.

It was only after the session that it hit me. This is J’s normal. She has spent her life going in and out of doctors’, therapists’, and specialists’ waiting rooms. It’s been like that from the very beginning, even in the womb.
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Dealing with Diagnosis Soup

It’s been a while since my last post. Mainly because we’ve been busy with what I like to call the ‘diagnosis soup’ – seeing all the specialists who have a stake in helping C with his disabilities. As well as learning how to integrate all the home therapy into our daily routine. With all of C’s and J’s diagnoses, if we did all that each Dr recommended – there would be no time for eating, sleeping …or living!
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